Join Team LuLu Rose
Saturday, May 16, 2020, at 9:00 am PST 5:00 pm BST
Hosted By Lucas and Isla Rose
Virtual Walkathon for NKH
Online Charity Auction
Fantastic virtual products, courses, services, and more!
Can’t Join Us for the Event? Participate in the #NKH5Challenge
Walk 5 laps.
Donate $5.00 to NKH research.
Nominate 5 friends to join in!
Be featured on our site! Post your photo on social media with the hashtag #NKH5Challenge
Walk in place as we shelter in place.
Turn steps into dollars for charity
Like many other organizations, we rely heavily on public events to raise money for NKH research. In light of our current global state, we decided to host a virtual "walk-a-thon" to raise funds for NKH research and awareness. Each Zoom the Room Team will host a Zoom meeting on their respective date. We will walk, ride, laugh, and enjoy the company of each other, from afar. We urge you to get involved in the first ever Zoom the Room and help us as we continue our fight to save the lives of hundreds of children around the world.
During the COVID-19 pandemic, research cannot stop and our medical system is being tested as never before.This fundraiser is pursuing a global impact for NKH research globally.
There has never been a more important time for all of us to step up. Join a Zoom the Room team today and help raise money and awareness for gene therapy for NKH while promoting the safe practices of social distancing by using Zoom video technology.
Entertainment and Special Guests
Host: Dave Spect owner of Improvmania (Chandler, AZ) will host our event to keep us entertained and laughing as we walk virtually!
Special Guest Speakers:
Dr. Kasturi - Notre Dame Gene Therapy Research
Sarah Steel - Fitness Tips for staying active at home
Nutritionist Dr. Eugene Muro NMD - Healthy eating tips
Online Charity Auction 100% of Proceeds to be donated to our cause
Messages from our Sponsors
Everyone who registers by 5/8 will receive a Zoom the Room T-shirt to wear during the event!
Sponsored By HOTO Screen Printing
Help Us Spread The Word!
Download (tap and hold) an image below then share to your social media using hashtags
#ZoomTheRoom #ZoomWalkathon #TeamLuLuRose
Your team will be featured on the website!
#ZoomWalkathon #ZoomTheRoom #TeamLuLuRose #NKH5Challenge
Frequently Asked Questions
A virtual walk via Zoom, to raise money for NKH research and build awareness about the rare genetic condition.
Nonketotic hyperglycinemia is a rare genetic condition affecting approximately 500 children and adults worldwide. It's considered an orphaned disease, which means all research funding is provided primarily by the families of those affected.
Zoom the Room proceeds will go directly to research for NKH, including gene therapy.
When you register you will be given the option to receive a special Zoom the Room T-shirt! You can wear this, or maybe dress in a quirky costume, or just whatever you choose to wear for the day! Zoom the Room is a come as you are event. We want it to be fun and stress free!
You will receive an email prior to the event. The email will have a zoom link in it. Click that link and use Zoom on your smart phone, tablet, or computer. You can choose to download the Zoom app or just use Zoom via your web browser. The email will also include detailed information on navigating Zoom, how to share your video feed, how to use the audio functions, and so on. There will be someone assigned to tech support during the walk.
Zoom the Room is for everyone! We encourage you to invite as many people as possible to register! You can register your whole family and use several devices to Zoom the Room, or you can all gather together wherever you are in your home. If your family is not under the same roof, simply share the Zoom link so they can participate too!
NO! You can participate in Zoom the Room by sitting on your couch, playing with your children, hanging out on your porch, however you wish! We do encourage activity, but we understand that some may not want to literally walk in place, or climb their stairs. No matter how you Zoom the Room you are welcome to join our event for some fun, light hearted entertainment!
You can share our event on social media, invite your friends and family to register. You can even donate directly to your team in support of this event as a sponsor!